Latest News

  

Read Tourette Scotland's Bulletin Board number 23.

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Visit our facebook page for information updates

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Meet the Tourette Scotland Highland Group

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Read about Fife Support Group's latest activities.

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Special Educational Needs - A Guide for Inclusive Practice, manual to be launched on 30th November. Contains chapter on Understanding Tourette Syndrome, written by Judy Barrow from Tourette Scotland.  ISBN 978-0-85702-163-2.

     

Tourette Scotland's new helpline number is

0300 11 11 462  and you can call Monday to Thursday 9am to 8pm 

or email help@tourettescotland.org

  

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About Us

Tourette Scotland is a national charitable organisation.  Our main aim is to support and provide information and research for people living and working with TS.
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What is TS?

Tourette Syndrome is a complex neurological disorder which manifests itself with involuntary bodily and vocal tics.  It is not emotional in origin.
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Events

We hold various events throughout the year including a Spring and Autumn Conference, as well as local network events, etc.
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LOCAL NETWORKS: Tourette Scotland has six local networks; Fife, South of Scotland, West of Scotland, East of Scotland, Highlands and Central.

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SUPPORT US:  Tourette Scotland is a registered charity (SCO21851).  We receive no statutary funding and rely on funding through grants, donations and fundraising.

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CONTACT US:  Tourette Scotland has an office base in Perth and we are happy for you to contact us with any queries or for support and information.

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Training

We can now offer a Training Programme "An Introduction to Tourette Syndrome".

The programme can be adapted to suit all audiences although we are especially keen to target, inform and educate those in the health, education and social professions.  The programme consists of a Powerpoint Presentation, Q and A Session and a Delegate Pack.  A session is approximately two hours but this can be adjusted to suit your needs.  There is a small cost per head + travelling expenses and overnight accommodation if necessary.  The sessions are tailored to give a face to face interactive experience of Tourette Syndrome.  They can consist of inservice style training, specially tailored programmes or classroom peer sessions, "circle of friends style".  We adhere to GIRFEC and our training can be attributed to Continuing Personal Development points.  Let us know your needs.

Please contact info@tourettescotland.org or 01738 646742 for further details and bookings.

 

Outreach Service

 

Interested in increasing your knowledge of Tourette syndrome and getting help/advice and information tailored to your needs?

What is the Outreach Service?

We are there to listen to your personal experience of TS and issues arising from this

We offer information and advice related to your own experiences

We can signpost to other agencies where necessary

We arrange contact with other people living with TS in your location where possible

We are there to guide you through the maze of services and to help you build a circle of support around the person with TS in order to get the best for them

We help people with TS and their families understand what Tourette syndrome is and offer advice about coping and managing the Tourette syndrome

We work in partnership with local authorities (school, health and social work) using relevant guidelines such as GIRFEC (Getting It Right For Every Child) in order to ensure the wellbeing of an individual with TS

We do where necessary/appropriate accompany individuals and families to meetings pertaining to the person with TS, such as school meetings to act in a supportive role

The Training and Outreach Service work hand in hand with each other to ensure a clearer understanding for people working with or living with TS.

Please do contact us - don't hesitate - we are here to help.

Outreach Mobile Number:  07716 450665

THESE SERVICES, AS WELL AS OTHERS, ARE NOT OFFERED BY ANYONE ELSE IN SCOTLAND.

 

What does Tourette Scotland do?

 

Our Mission:

Objective One:

-Supporting the lives of those with Tourette syndrome, their families and associates

Objective Two:

-Creating an Inclusive Society for those living with Tourette syndrome

Objective Three:

-Improve the Quality of and Access to, Services for those living with Tourette syndrome

Objective Four:

-Raising awareness about Tourette syndrome and associated conditions.

In the past few years, Tourette Scotland has grown in response to the demands of our community - especially with regard to the need for improved services, better support and more awareness about Tourette syndrome.  As such we have recently concentrated on delivery, governance and procurement in line with other national representative bodies, whilst striving to keep our usual services to a standard that supports and informs our membership.

Our future Development Plans will build on the uniqueness, the capacity, value and context of Tourette Scotland to bridge the gap between the private, public and voluntary sector provision, for the benefit of those living with and affected by Tourette syndrome.

 

 Criminal Justice - help when challenged by police/community wardens

 

 

We have recently had several successes with overturning court cases that have been brought against people when its clearly TS behaviours that have drawn the attention of police or community wardens.

In these cases, Tourette Scotland has worked with the legal teams to explain the condition, the individuals' traits, and (as in the latest case - 'arrested for swearing, making strange movements, and spitting') can define exactly why the behaviours are not intended.

This 'intent' has to be proved, and we can argue that its not pre-meditated or meant.

If you have any incidents that need support or scrutiny, we now have a template of actions and legal advice that can assist.

Contact the National Office on help@tourettescotland.org

 

Not in Scotland?  Want help for Tourette syndrome?

Whilst Tourette Scotland has a remit for Scotland, we also refer to other agencies with whom we share knowledge and information.

Therefore if you are resident in England, Wales or Northern Ireland you should contact Tourettes Action who will be able to give information about their range of services and area support groups in England, Wales and NI.  Their website is http://www.tourettes-action.org.uk/

If you are a resident of Southern Ireland, go to http://www.tsireland.ie/ where you will find out where to get support and help, in their support groups within the four provinces of Ireland.